ACCESS TO VORASIDENIB IN THE UK
When news first broke of the successful trials of Vorasidenib on Low Grade Glioma (LGG) brain tumour patients, many patients and their families were of the opinion that, at last, there was hope for the future. But it would appear that, at present, this hope is unfounded for patients here in the UK. So we are asking you to please sign this petition to put pressure on the suppliers, Servier to make this drug available in the UK>
LGGs afflict mainly young people – some have not finished their education, many have just begun their careers, some are hoping to start a family whilst some already have children. All are desperate for an effective treatment to enable them to live their lives as fully as possible.
Please click on the link to sign the petition.
https://www.change.org/p/access-to-vorasidenib-in-the-uk
UPDATE:
30TH MAY 2024
Latest news:
30th May 2024
Vorasidenib is now being dispensed by some Neuro oncology centres in the UK via an ‘early access’ scheme. The criteria for this is that patients, as in the trials, LGG patients have had surgery but not further treatments i.e. radio/chemotherapy. This of course means quite a significant quantity do not qualify. We are of the belief that new trials on these patients would maybe have to take place before this fact changes and so are now asking that these take place at an early date.
We are in the process of asking supporters to write to their MPs but with the General Election approaching and Parliament now dissolved, this process is now delayed at present.
