Welcome to Astro Brain Tumour Fund

ASTRO BRAIN TUMOUR FUND IS THE ONLY UK CHARITY TO FOCUS PURELY ON LOW-GRADE GLIOMA (ASTROCYTOMA, OLIGODENDROGLIOMA AND EPENDYMOMA GRADES 1 AND 2) BRAIN TUMOURS

We are working to find a cure for low-grade astrocytoma, oligodendroglioma and ependymoma brain tumours by raising money to support low-grade glioma (LGG) research projects at the most innovative neuro-oncology research centres in the UK.

We also offer information, inspiration and support to help patients, carers, friends and relatives through the challenges of living with an LGG. Our online Facebook support group includes over 600 LGG patients and carers from all over the world, and is renowned for its welcoming, encouraging and well informed members who can expand upon all the information contained in this website.

Staffed entirely by volunteers, Astro Brain Tumour Fund will ensure that every penny you donate goes to where it is needed most. We have no overheads, no salaries and no expense accounts to pay. With all team members having personal experience of this challenging tumour type, finding a cure is at the centre of everything that we do.

We hope that you draw strength from the knowledge that the trustees of the charity are working hard to offer real hope for all of us whose lives are touched by low-grade gliomas. This website aims to bring together key information related to the low-grade glioma community in the UK, whilst information related to the global community can be gained through our Facebook closed low grade glioma support group.

More About Us

NEWS

NICE AND VORASIDENIB

VORASIDENIB FOR TREATING TREATING ASTROCYTOMA OR OLIGODENDROGLIOMA WITH IDH MUTATIONS

GREAT NEWS REGARDING APPROVAL OF VORASIDENIB IN THE UK!

31st March 2026

We are delighted to be able to report to you that NICE has announced today that vorasidenib has been approved by them for prescribing to low-grade glioma (LGG) grade 2 patients who have had surgery but no other treatments, within the NHS

SUPPORT for all

Support

Look here for listings which will apply equally to patients and carers, with many services also being available to other family members including children, grandparents and those not directly involved in day to day care but still very much affected by the low-grade brain tumour diagnosis.

Please join the Low Grade Support Group Facebook page. This is a closed group for low-grade patients and their families. Apply to join the group and you will be contacted by the administrator, Linda. Please make sure your Facebook/Messenger settings are such that you can receive a message from her.

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From Small Beginnings ....

Low-grade Glioma Information

Astro Brain Tumour Fund was founded in April 2001 to focus purely on low-grade glioma brain tumours; specifically astrocytoma, oligodendroglioma and ependymoma.

Particularly:

To offer support to those whose lives are touched by this tumour type

To raise funds for research and support projects

To gather and share information

To raise awareness of the challenges of living with a low-grade Glioma brain tumour

Find out More

Recent Fundraisers

A massive thank you to all our fundraisers

Raised : £5,500

Latest News

The latest news and information

ACCESS TO VORASIDENIB IN THE UK

GREAT NEWS REGARDING APPROVAL OF VORASIDENIB IN THE UK! We are delighted to be able to report to you that NICE has announced today that vorasidenib has been approved by them for prescribing to low-grade glioma (LGG) grade 2 patients who have had surgery but no other treatments, within the NHS. Since 2023, Astro Brain Tumour […]

20th NORFOLK FAMILY WALK 2026

Research

Association of MGMT status with survival in low and high-grade IDH-mutant astrocytomas. Background MGMT is one of the key genes associated with tumour progression and drug resistance. In short, it is an example of a Tumour Suppressor Gene — a class of genes that, when active, prevent cells from becoming malignant. MGMT encodes a protein […]

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