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18th Norfolk Family Walk 2024

SIGN UP  and join us at Holkham Hall Estate, Norfolk on
Sunday 22 September 2024, 10am to 4pm.
In support of brain tumour research and support.
We look forward to welcoming new walkers as well as our faithful supports who turn out year after year for this uplifting event.

HOLKHAM REGISTRATION FORM

Norfolk Family Walk 2024 Sponsorship Form

Follow the link below for full details.

 

 

 

 

 

 

 

 

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SUPPORT for all

We are here to help

Look here for listings which will apply equally to patients and carers, with many services also being available to other family members including children, grandparents and those not directly involved in day to day care but still very much affected by the low-grade brain tumour diagnosis.

Please join the Low Grade Support Group Facebook page.  This is a closed group for low-grade patients and their families.  Apply to join the group and you will be contacted by the administrator, Linda.  Please make sure your Facebook/Messenger settings are such that you can receive a message from her.

 

 

 

 

 

 

 

 

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From Small Beginnings ....

Low-grade Glioma Information

Astro Brain Tumour Fund was founded in April 2001 to focus purely on low-grade brain tumours; in particular:-
To offer support to those whose lives are touched by this tumour type
To raise funds for research and support projects
To gather and share information
To raise awareness of the challenges of living with a low-grade brain tumour

 

 

 

 

 

 

 

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Welcome to Astro Brain Tumour Fund

ASTRO BRAIN TUMOUR FUND IS THE ONLY UK CHARITY TO FOCUS PURELY ON LOW-GRADE GLIOMAS

We are working to find a cure for low-grade astrocytoma, oligodendroglioma, oligoastrocytoma and ependymoma brain tumours by raising money to support low-grade glioma research projects at the most innovative neuro-oncology research centres in the UK.

We also offer information, inspiration and support to help patients, carers, friends and relatives through the challenges of living with a slow growing brain tumour. Our online Facebook support group includes over 300 people from all over the world, and is renowned for its welcoming, encouraging and well informed members who can expand upon all the information contained in this website.

Staffed entirely by volunteers, Astro Brain Tumour Fund will ensure that every penny you donate goes to where it is needed most. We have no overheads, no salaries and no expense accounts to pay. With all team members having personal experience of this challenging tumour type, finding a cure is at the centre of everything that we do.

We hope that you draw strength from the knowledge that there are thousands of people around the world who are working together to offer real hope for all of us whose lives are touched by low-grade gliomas. This website aims to bring together key information related to the low-grade glioma community in the UK, whilst information related to the global community can be gained through our online support groups.

 

 

 

 

 

 

 

More About Us

Recent Fundraisers

A massive thank you to all our fundraisers

Raised : £1,680

GREAT SCOTTISH RUN

  6th October 2024 Kane Willoughby and team successfully took part in this Half Marathon on 6th October and raised £1,680 via a Just Giving page. Kane did this in support of his sister Amy who is undergoing treatment for a low-grade brain tumour. One of the team generously sent Amy their medal  
Raised : £8,100

BARCELONA IRONMAN

Fraser Allison successfully took part in this gruelling challenge in support of his best friend, Archie Goodburn who was diagnosed in May this year, at the age of 22, with 3 Oligodendroglioma brain tumours. Fraser reports that Archie has, since then, shown unbelievable resilience and positivity which inspires him and everyone he is surrounded by. […]
Raised : £8,500

EIGHTEENTH NORFOLK FAMILY WALK

Astro Brain Tumour Fund’s Eighteenth Norfolk Family Walk took place at Holkham Hall, North Norfolk on Sunday 22nd September. The weather was mild and the rain stayed off until late afternoon, but it wasn’t enough to dampen spirits! Around 200 adults, children and dogs walked one, three, six or ten miles – some walked a […]

Latest News

The latest news and information

ACCESS TO VORASIDENIB IN THE UK

LGGs afflict mainly young people – some have not finished their education, many have just begun their careers, some are hoping to start a family whilst some already have children. All are desperate for an effective treatment to enable them to live their lives as fully as possible. When news first broke of the successful […]
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18th NORFOLK FAMILY WALK 2024

    SIGN UP FOR THE 18th NORFOLK FAMILY WALK! Sunday 22nd September 2024 FULL DETAILS HERE          
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Research

  HIGHER COGNITIVE FUNCTIONS & RETURN TO WORK IN LGGS Professor Stephen J. Price BSc MBBS (Hons) PhD FRCS (Neuro Surg), Department of Clinical Neurosciences, Cambridge Biomedical Campus We are now into the second year of funding PhD student Jasmine Kennedy who is carrying out this project under the supervision of Prof Price.  A questionnaire […]
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